Part 2: if you were the parent, would you feel it would be ethical to keep them alive?
Nope. Even if a cure was on a cure was on the horizon. Its tough when its someone else though. My father had alzheimers. Initially it was like well he like to walk around and eat and sing. There is some quality of life. Eventually though he could not swallow whole food and was in a wheelchair when not in bed and his hands had curled up. It was clear that if it were I in that condition I would like a nice does of barbituates.
Get your living will done, my dude. If you don’t make your wishes known, you’ll traumatize some EMS who has to perform a very crunchy CPR on you. My dad, a former EMS, has a “no aerobics” DNR set up so he won’t be someone else’s trauma.
Thats all well and good but there is no death with dignity here and I have seen the horribleness of hospice.
I barely want to live as is
If there is a chance for a cure maybe, but also even if it if there is am I just dooming my parents and myself into homelessness for my cure ? If the answer is yes I’ll skip this chapter in cosmic existence not too keen on the current model we are all apart of so maybe my bias has already positioned any position I might have taken with DoomerTM view. As a parent, I would want to do anything to keep my child alive and give them a chance of life that I never had or at least the chance of getting being happy, but I wouldn’t want them to suffer with no port of safety from the storm that is life along with any pain that wouldn’t be alleviated or healed/cured… I couldn’t do that to just have a genetic version of myself…… man the longer I think about maybe I shouldn’t have replied maybe I wasn’t the target audience ¯\_(ツ)_/¯
No…
On the Sub question about the parents I don’t have an easy answer. That would be a conversation I would have with My child.
I can’t think of a clearer or more concise answer.
It’s so damn difficult to questimate what that’d be, but I’d like to wish I would have the will power to live the fullest life I could
As someone with half that list of health issues. I struggle everyday. Most people even family do not care they can leave, go eat, live life. I cannot. Nobody cares until it’s them. They will never understand, have the compassion, empathy, respect to even try to help you, not even to clean up after themselves for things that make you sick, (gluten issues and they leaves pizza crumbs and greasy pans all over counters and stove). Plenty of sorries to help their emotions feel better though. Nothing for you though. Not money to help with medical things. Not care to keep themselves in order. People do the bare minimum and the world is fine with it.
I don’t want to live like that, not as a parent, myself, or my family members. Shits hard. I don’t want to die or be dead so I’m not looking to OFF myself but fuck its hard to get through each day. It takes a solid, hard headed, self disciplined, never give up attitude to live like this. Yet you still fail to thrive and have any chance of health.
I am sorry you don’t have the support you deserve, even from family. That must make a difficult life even more so.
My wife has cerebral palsy and in the last 5 years has developed chronic back pain that has taken away what little mobility and dignity she had.
It has been upsetting to watch her decline. Doctors seemingly unable to alleviate her symptoms, but we keep trying.
I am head over heals in love with her. The disability doesn’t change that. I am there for her every need, day or night. We appreciate each other and spend all our time together. I wish you could find someone to do the same for you.
Not even if you paid me
No. My main reason for wanting to live as is is so I can improve the world for others, and in that situation I’d just be a drain on society, and also suffering.
If I was a parent I would not make decisions for my child, assuming they are capable of making decisions, it’s not my choice whether they should live or die. By the same token, I wouldn’t bring then into the world in the first place, however, as they cannot provide consent to live.
